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About Marlo, her websites and her life dealing with RA…

I just posted about 60 Incredimail skins, letters and notifiers from Cuddle Creek ©LLC in my store - http://www.marlodee.com

Holiday designs ~ Cute designs ~ Doggie Designs ~ Gingerbread ~ Snowmen ~ Halloween and MORE! All are $6 or less! Most include a skin and letter. Now the skin you have to have Incredimail Premimum in order to use them. So if you have Incredimail Standard you have to UPGRADE to use the skin!

Come take a look! I am an authorized reseller and she (Cuddle Creek) will stop offering them shortly!

 



06 22nd, 2009

Well, my husband has come down to Florida to rescue me. My knees went bad while I was here so it is going to be hard to drive myself back. So, he flew down last week and is going to help me drive back to OH. We will load up my stuff and the cats and head back around July 6th. So, for a few days I will not be online.

The weather has done a 360 - today it was hot - humid and about 100degrees. Whew - now they need rain! lol Go figure…

I had to go to the docs last Friday because my knees hurt so bad. I have been putting off a 2nd knee surgery. My doc told me last Sept./Oct. that the tear I had 6 years ago has come back and it is time to go in again. This RA is driving me nuts. I have to say I am a little scared going under the knife again. But, I am going to have to put my fears aside and do it - otherwise get a chair and not walk. I don’t want the latter. So, I went to the Clinic to see a doctor and she have me a steriod shot and prednisone pack. So, that should cover me until I get back to OH. I have lost a few pounds since I have been down here - but I need to lose more. It won’t cure my knee problems - but I know it would help. I need to change my mind about my weight and get serious. It is so hard sometimes to focus on everything at once. I know what I am supposed to do, but the actually doing part - I am not motivated at all. I need to change my frame of mind about that.

I do have to say that I do see a need for more support for Rheumatoid Arthritis victims. There are really no support groups for this disease. It is such a quiet disease - like no one knows it exists. The thing that really gets me is when I walk with my cane - people will ask how I injured myself. I tell them I have a disease and they look at me funny because “You don’t look sick”. Then I tell them I have RA - they start to tell me all of their ailing arithritis spots on their body. They just don’t understand. I end up listening and they normally say - I understand. No you don’t - but that is ok - I guess.

Well - have a good evening!



05 20th, 2009

Hello

Well it has been raining (almost non stop) for three days now here in Orlando, FL. I am still in Orlando and I plan on staying here for a few more weeks if not another month. I thought I would finish up some projects(fixing up the place) before heading back to Ohio. But, the weather - whew….

We didn’t have rain for like 2/3 weeks straight. And everyone - I mean everyone was crying out to the clouds for rain. Boy - did we get rain. Areas around me are flooded. Daytona Beach has a lot of flooding. They have recorded over a foot of rain! And, on top of all of this rain - we have tornados popping up today. Geez…. They had a tornado hit a town near by and tore off roofs of a few homes - thankfully no one was hurt. And today - a tornado was spotted in Kissimee(sp)/Disney area. And they were saying some funnel cloud action in the area I was shopping in yesterday.

Yesterday, Tuesday, I decided I needed to go to the bank and then I thought I might as well go pick up a few essentials while I am out. So, I headed to Super Walmart on Sand Lake Rd/John Young Pkwy. Now, Sand Lake Rd - hits International Drive. If you head up Sand Lake a few miles - you hit International Drive. Which if you know from Disney - is Disney area. Wet and Wild is also there and so on. I only go that direction because Whole Foods is out in that area. (wish there was one closer but…) Actually it is not a long or that bad of a drive. But, I learned not to head there on the weekends. That is when you get the travelers coming in and they get off the exit there and have no idea where they are going. So, you get people pulling in front of you - stopping in the middle of the road and so on. Gets to frustrating…lol lol

Anyway - I thought well it was a good thing I went out yesterday. Now, a few hours ago - about 3pm - I was sitting in the recliner in the living room watching channel 13. It is the all news channel for Florida. They of course were talking about the weather. I pulled Kitty(my big white cat) up into my lap and looked out the window. There I saw a small funnel shape formation outside the window above the trees that are right behind us. Whew - I put Kitty on the ground - jumped up and headed to the window to get a better look. I watched this cloud formation move from funnel to not to funnel. What a strange feeling. I was frightened - I will say. But the clouds were moving so fast - that I knew it wasn’t going to form too much. But, I have to say - whew…too much excitement for me.

I am not good when it comes to weather. Ask my husband. Weather like this - especially tornados - there is no warning. You don’t really know what is going to happen. And, I am not used to being in a trailor/mobile home. I don’t know what to do when a tornado comes - You know. Growing up in OH - you headed to the basement or lowest level in a closet away from windows. Here - they do not have basements and they are always saying - if you are in a mobile home to get out. Well, I have the cats and then me - and it is hard for me to move fast. I guess if I was motivated - like a tornado coming - I might move faster I don’t know.

Today - I have had to take extra pain pills. The weather and barametric(sp) pressure has been killing me. I mean hurting my joints - my left hand is killing me and my side(right side). I got up a little while ago to get some water and pow - the right side of my body started to hurt a lot. Like an electric current went whoosh up my body. So, weather definitely effects my Rheumatoid Arthritis.

Things are calm again - just some light rain right now. But, they tell me more on the way. Whew - it is going to be a long night. I was up until 3am last night because my legs were killing me. With that it is not just joint pain but muscle pain as well. I did get some support socks. I do like those. They are kind of hard to get on when you are really swollen and when your hands hurt. But, once I get them on - they do help cut down that pain to a low roar.

If you have leg pain - like muscles hurting and joint hurting too - I suggest support socks/hosiery. They have many different styles and colors now. So, you can get some (like I did) that look like real socks - not like something granny would wear - well my grannies would have worn. lol lol

I found a great website - Footsmart.com - They have a large selection of things for feet and legs. This is not a plug for them. Just something I found. I purchased their support socks for women. I got the medium support. That is good for swelling and leg pain. They said if you are starting out with support socks that you should start with light to medium first. The strong/heavy duty can actually hurt you more then help. The strong should be used only if you are used to it - worked your way up or your doc recommended you get those. Otherwise, if you have just muscle/leg pain - start with light. If you have swelling - you can go to medium. I had another pair from my surgery when I had the tumor removed. Now they were stockings - went all the way up. So, I was wearing those on and off for a while. And I have been diagnosed with Edma too. So, I was used to these types of things on my legs. That is why I got the medium. If you are just starting out -maybe get the light. You can actually wear them everyday like real socks. Make sure you talk to your doctor and see if they think you should get a pair. This is not something just to get - like if you bloat up during periods and such. They do have side effects. Like you can get dizzy/lightheaded - or other things. I get dizzy sometimes - but I have learned to take it slow when wearing them. Also they say don’t wear them when you sleep. I wear them when I nap - because taking them on and off is a drag when my hands hurt. But, if I am sleeping for hours I take them off.

Well anyway - didn’t think I was going to plug support socks. But, if you have Edma or RA - try the Footsmart.com website. They have wonderful things. And their pricing isn’t too bad. I am thinking of buying some shoes from them soon.

Well - keep an eye out for me. You just might see me floating by here in the next day or two. I will be a woman with reddish/brown hair, green eyes, large woman and I will have two cats with me (one white and one black/white). I might have two little lizards and yuck two other things as well - lol lol. Anyone know how to build an ark? lol lol lol

- Marlo



05 16th, 2009

Popular myths about rheumatoid arthritis (RA) can keep you from activities that could actually make you feel better, as well as cause you to make lifestyle changes that will have no real affect on your condition. Here are the most common myths about RA and the truth behind each one.

Myth No. 1: Rheumatoid arthritis affects everyone the same way. (Definitely not true - I have seen some women who could hold a job while dealing with this. I had one lady who had RA (she was not very understanding nor compassionate) tell me - what is your problem? I can work - so you should be able too? I mentioned the pain I go through - not just physically but mentally as well - and she said - hey so what. It doesn’t bother me and I don’t have that much physical pain). She was something else let me tell you)

Myth No. 2: Only old people get rheumatoid arthritis. (I was 32 when I was diagnosed. I just met a lady who was in her mid 50’s when she was diagnosed)

Myth No. 3: If you don’t look “sick,” you don’t really have rheumatoid arthritis. (THIS one always gets me. Most people who look at me straight on - think yeah ok whatever. I have even heard it is in my head. If I “feel better” I will be better. Those kinds of things)

Myth No. 4: Rheumatoid arthritis is a normal part of aging. (Not true - this is an actual disease - not growing old)

Myth No. 5: Rheumatoid arthritis symptoms aren’t treatable. (I know this is a myth. But I do feel sometimes that the meds just don’t treat enough. I guess either I expect too much or they are not just working that well with me)

Myth No. 6: Rheumatoid arthritis quickly leads to disability. (I have to admit. I fell into this train of thought. I already have crippling. I do believe I will end up in a wheelchair years to come. But, if the Orencia keeps slowing things down - well…who knows)

Myth No. 7: If you have arthritis, you shouldn’t do physical activities. (This one - I say really take it easy. I tend to get energy bursts. With these bursts - I tend to over do it. I have a list of items I need or have to get done. So, I tend to use my energy bursts to do them. Then I hurt a lot later. So, I am trying to train myself to take it easy to and slow down. I do sit down more and rest more while doing things - so that has changed for me)

Myth No. 8: Any exercise is good for rheumatoid arthritis. (the article says weight lifting. I am going to have to say for myself and my bad shoulders - probably not in the sense of lifting weights but cans of corn. lol lol I do like the pool therapy. It is an all day event though because it is exhausting at times)

Myth No. 9: Living in a hot, dry climate can cure your rheumatoid arthritis. (I can really state my case with this one. When I was first diagnosed, David and I moved to Phoenix, AZ. Yes - it really didn’t make a difference. Now, being in the heat did help. But, I am so fair skinned that unless you have a porch to sit on - I couldn’t sit in the sun for long periods of time. I did purchase a portable infared sauna. I do like it. It is like having AZ without the crazy drivers, crazy heat and no rain spells (whats up with that?))

Myth No. 10: You should wait until you have serious joint problems before you start medications. (NO NO NO - do not wait. If you have symptoms or problems - get to the doc now. It can’t be cured, but it can be treated and slowed down!)

Now, I did NOT come up with these on my own. I copied this from an article by By Eric Metcalf, MPH
Medically reviewed by Niya Jones, MD, MPH. Here is the link to this article - http://www.everydayhealth.com/rheumatoid-arthritis/rheumatoid-arthritis-myths-debunked.aspx?xid=nl_EverydayHealthHealthyAging_20090507

I will also add this to my RA links on the side. This is a good article to send to people in your life who just don’t get RA. Believe me, there are always one or two in your life that will not understand what you are going through fully. They will say things like - Oh, you just need to get up and move more. OR Maybe if you lost more weight that will solve it. This one is my favorite - Oh, You don’t look sick. The pain isn’t that bad. It’s more mental then physical and so on. I have heard them all. The sad thing is I have actually heard the ones above from RA doctors.

So visit the article and see what they have posted.

- Marlo



Hello

The ladies of Tinker & Co. are going to participate in a charity event for the Save the Children organization. They have decided to create a special LARGE kit that you can only purchase through their blog. It is an adorable kit - Milly Friendship.

With this kit purchase you will receive:
You will recieve two emails to download your kit from as there is 75mb worth of yummy stash.

  • 20 8 x 8 papers
  • 3 A4 sheets of milly printables in three different sizes
  • 5 png ribbons
  • 7 png motifs
  • 4 png buttons
  • 5 png brads
  • you will need a basic editing program such as microsoft word to use the png files.

    75% of the purchase price will go to the occassion. So, help one of the ladies, Tracy, raise a lot of money! And get an adorable kit to create cards or scrapbook pages from! You MUST purchase this kit from their blog! I do NOT offer the purchase through my store at MarloDee Designs. I do have all of their other products listed as they have taken me on as an authorized reseller of their adorable card kits, paper packs and scrapbooking kits. I do have a listing for this adorable kit in my store - but it is not set up to purchase from my store - but it will direct to you to

    HERE! (click the word HERE or the photo below to go to Tinker & Co.’s blog now! (will open in a new window))

    Thank you - Marlo



    Hello!

    Well - here is a quick update! I just finished adding printable card kits and paper packs from Tinker & Co. I am now an authorized reseller for them. I am excited! They have beautiful printable card kits ranging in price and size. They also have a large selection of paper packs! These are great for card making and scrapbooking!

    So - come visit MarloDee Designs - http://www.marlodee.com and you will see some of the new products added!



    Hello

    I just added a new design to my fantasy themed Zazzle gallery - My Mystical Garden - http://www.zazzle.com/mrssocolov4*

    Winter Beauty D1

    I also have her on tshirts, babywear, mousepad, stickers, business card, postcards, return address labels and more! Come take a look!

    - Marlo



    Hello!

    I just added an Exclusive clipart collection to my store at http://www.marlodee.com - I am the ONLY authorized reseller on the planet that can sell this in my store! This collection is adorable and has 10 transparent .png files! Yes, I do allow commercial use with my clipart/graphic packages! Just don’t resell them as is! Take a look at the sample image….

    I have also added an adorable clipart collection of Cows to my store. This is a SemiExclusive collection. Which means only 3 businesses are authorized to resell this collection - and MarloDee Designs is one of them! This collection is also .png format and transparent. It also has 10 clipart/graphics and is ONLY $10! Take a look at the sample image here…

    So, when you get a chance - come visit MarloDee Designs at http://www.marlodee.com for these and other collections I am addding daily!



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